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About GEP-NETS

Complications

One of the things that NETs produce is a hormone called serotonin. If the tumour has spread to the liver and there is too much serotonin being produced, it can cause carcinoid syndrome.1

About 1 in 10 people with GEP-NETs develop carcinoid syndrome.2

The main symptoms of carcinoid syndrome are:2,3

  • Hot, red flushing of the skin
  • Diarrhoea
  • Wheezing

For more information, please see our page on carcinoid syndrome.

If you experience any of these symptoms, consult your doctor.


References

  1. CRUK. Carcinoid syndrome. Available at: https://www.cancerresearchuk.org/about-cancer/neuroendocrine-tumours-nets/about-carcinoid-syndrome. Last accessed April 2025.
  2. NORD. Carcinoid syndrome. Available at: https://rarediseases.org/rare-diseases/carcinoid-syndrome/. Last accessed April 2025.
  3. Patient.info. Carcinoid tumours. Available at: https://patient.info/doctor/carcinoid-tumours#nav-5. Last accessed April 2025.