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Hormonal and Rare Conditions Carcinoid Syndrome Living with carcinoid syndrome
Living with carcinoid syndrome
Living with carcinoid syndrome

Living with carcinoid syndrome

Carcinoid syndrome can have a negative impact on your quality of life and can impact your diet, work, physical activity, and social life.1

A photo of a group of friends chatting at a café.

It can be helpful to try and keep track of any triggers that cause flushing of the skin to help you manage your symptoms.

Common triggers include:2 

An infographic of common triggers. Alcohol or caffeine, large meals or spicy foods, stress, exercise, foods that contain tyramine (such as chocolate, bananas, and walnuts).

As you may already know, or have personally experienced, getting a diagnosis and finding the best treatment for your carcinoid syndrome can be a long and frustrating journey. You might still have questions, and that's completely understandable.

If you'd like to learn more about how this cancer can affect work, studies, travel, and family planning, as well as the support groups available to help you along the way, visit our page on living with GEP-NETs. 

References

  1. Rubin de Celis Ferrari AC, Glasberg J, Riechelmann RP. Carcinoid syndrome: update on the pathophysiology and treatment. Clinics (Sao Paulo).
  2. CRUK. Carcinoid syndrome. Available at: https://www.cancerresearchuk.org/about-cancer/neuroendocrine-tumours-nets/about-carcinoid-syndrome. Last accessed April 2025.